Autism Child Care Connection Network

Child Care, Advocacy and Support for Children w/Autism and their Families

Nicole
  • 33, Female
  • Coatesville, PA
  • United States
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Childcare, Co-op, Respite?
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Started this discussion. Last reply by Nicole Nov. 16, 2009.

Education News Parents Can Use - A TV series about ways to ensure children's educational success

Started Sep. 17, 2009

What is Respite? What to Consider in a Respite Program

Started Sep. 9, 2009

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Nicole added a video
June 26
There are 26 forum topics on Autism Child Care Connection Network
June 25
Nicole added a blog post
From Science Daily - http://www.sciencedaily.com/releases/2010/06/100623085725.htm Mothers of children with autism see their careers disproportionally affected as they confront greater demands on their time, inflexible workplaces and increased medi…
June 24
You Aut to Know! has completed another great show. The archived version of Debra Ginsberg joins Nicole only on You Aut to Know! is now available for you to listen to anytime. Visit the BlogTalkRadio app to check it out.
June 22

Comment Wall (16 comments)

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At 10:49am on March 26, 2010, Alyssa Lichtenwalner said…
Hey Nicole, I just found your site, I live in the Allentown area. The church that I attend has started a ministry for children with autism about 3 years ago, in the last year from that program we have started an autism respite program. We hold a respite every six weeks and the event lasts about 4 hrs. You can check out our website, www.autismrespiteprogram.shutterfly.com . We have an average of 30 kids that attend, ages 3-18.
At 9:43pm on February 16, 2010, jenny cassidy said…
Thanks Nicole,
My first question - does anyone know of a good pediatrician who has experience with children on the spectrum?
Thanks for any information.
Jenny
At 9:30am on February 2, 2010, Susan F. Rzucidlo said…
Thank you Nicole, It wasn't hard to do the paperwork and the clerks of the court were very kind. When I get some time I will put together a step by step of what I did. The cost to do it myself was under $200 to hire an attorney ranged from $1,500 to $2,500. I'll be checking out the website more and more. IT is really well put together.
Susan
At 8:25pm on February 1, 2010, jenny cassidy said…
Thanks. I appreciate the information.
At 10:59pm on December 02, 2009, Linda gave Nicole a gift…
Bouquet of Roses
You are doing a wonderful job. Love the radio show.
From the Gift Store
At 9:45pm on December 1, 2009, Donna Dolan said…
Hi Nicole, and thank you for the welcome message. I am still navigating through the website and hope to get up to speed quickly. I am a very busy, single mother of two beautiful, teenage sons, (my son, Connor ((autism/PDD) is going to be 17 next month!) and would love to facilitate/support a program locally here for our kids.
I'll be posting soon, and would love to share some thoughts and ideas.
Donna
At 5:36pm on November 16, 2009, Christine Furmanak said…
Hi, Nicole,

I am amazed you have the ability to welcome everyone individually as you do! I am studying the threads of the site, and am wondering if you share phone numbers, as I would be interested in talking with whomever has the most knowledge and time to share about what has been done to date with your childcare efforts. I know it is not easy ... the accredation, finding a building, liability issues, etc. Have you ever considered starting at someone's private residence. I see your members are pretty widely spread out. I am assuming the only childcare available currently are those providers who come into a person's home for a few hours? Thanks for your time, Nicole. Have a great night,
Christine
At 7:08am on November 16, 2009, Christine Furmanak said…
Hi, Nicole,

Too late? :-) No, I hope I have something to offer, being a seasoned parent of an older child.

I was intrigued by this site because I too have wished to implement the idea of a childcare coop or special needs site for family respite. I have lived in this area for 3 years. Prior to that, I lived in State College, PA, home of Penn State Univ., and parents were indeed meeting there to bring such a dream to fruition. I remarried after over a decade of being single, to a wonderful untiringly selfless man, and thus moved to this area, and am now beginning to find the energies again to explore how I might help others in the community struggling to embrace the diagnosis of autism.

Of all the myriad of challenges I have faced as a single parent raising an autistic son for nearly two decades now :-), I have found the greatest, most difficult to overcome long-term, to be that of pervasive fatigue. I believe a respite care setting for special needs kids, especially servicing autistic families, would have profound impact on the joy and love those families can spread out to their own members having found a bit of refreshment in their long journey.

It is not the complexities of this journey which overcome us; we can research and learn and adapt to the newness and sometimes puzzling mystery of autism as a diagnosis; but it is the unabated demand on our human energies as a mother, as a father. We just need someone to offer a hand up, a tiny reprieve as we recharge our bodies and re-energize our souls. Sometimes that means a husband and wife get-away, even if just a quick night out for dinner, sometimes it means a couple hours to share coffee with a friend. Sometimes it means connecting to family outings like attending a wedding celebration without all the complications of an autistic child in tow. :-)

At any rate, I am eager to see how I might be a part of this respite care dream you have fostered here. I would love to open communication, and am eager to hear more of your past inspiration and journey to this point.

God bless your efforts,
Christine
At 9:30pm on October 25, 2009, shanna lizardi said…
Hello Nicole,

Thank you for the very warm welcome. I'm currently still trying to get adjusted to our new location in Pennsylvania . I've recently found a daycare in Scranton Pennsylvania that helps with autism but now I'm battling with with is this the best environment for my beautiful little girl. The program I'm looking into works with autism children but after talking with daughters doctor she suggested that a better program would be one that is mixed with children who are on the spectrum and one's that aren't. Now I don't know what I should do I only want the best for my daughter. Do you have any information on the best types of learning environments for autistic children?
Thanks again
Shanna
At 9:27pm on October 19, 2009, Maria said…
Thank you Nicole for welcoming to the group. this is great!!

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Nicole

Mothers of Children With Autism Pay Price in Workplace



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Posted on June 24, 2010 at 10:02pm —

Nicole

Lisa Alexander, from A Voice For Neli, will be my guest on You Aut to Know! - This Sunday 6/20 at 6PM

Hello All,
I am writing to invite each and every one of you to listen to You Aut to Know! this coming Sunday at 6PM EST.

Lisa Alexander, a mother of an 18 year old with PDD-NOS will be my guest. Her son was arrested outside of his local library under the suspicion that he had a gun. If you check out her website - http://avoiceforneli.com/ and read her story or check out her video, you will see, that this was not the case. Neli goes to a

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Posted on June 18, 2010 at 3:00pm —

Nicole

Yes this is a true story! - Schools using electric shock backpacks on children with disabilities

From Alternet

School for Disabled Forces Students to Wear Backpacks That Deliver Massive Electric Shocks



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Posted on May 5, 2010 at 8:37am —

Nicole

The Supreme Court will decide whether drug makers can be sued by parents who claim their children suffered serious health problems from vaccines

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Posted on March 12, 2010 at 12:35pm — 1 Comment

Nicole

How to post information to this network

Posting news and blogs to the network is very easy.

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Posted on March 4, 2010 at 8:05am —

 
 
 

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