Autism Child Care Connection Network

Advocacy and Support for Individuals w/Autism and their Families

Nicole
  • 35, Female
  • Newark, DE
  • United States
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Connect - Pennsylvania

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Comment Wall (17 comments)

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At 7:59pm on April 28, 2011, Linda said…
Nikki, I did something to the website.... there are several rectangular boxes at the top.  I have no idea where they came from or how they got there but I think I am the only one who has been adding things.  Can you check it out to see what creative action I have taken? Thanks
At 10:49am on March 26, 2010, Alyssa Lichtenwalner said…
Hey Nicole, I just found your site, I live in the Allentown area. The church that I attend has started a ministry for children with autism about 3 years ago, in the last year from that program we have started an autism respite program. We hold a respite every six weeks and the event lasts about 4 hrs. You can check out our website, www.autismrespiteprogram.shutterfly.com . We have an average of 30 kids that attend, ages 3-18.
At 9:43pm on February 16, 2010, jenny cassidy said…
Thanks Nicole,
My first question - does anyone know of a good pediatrician who has experience with children on the spectrum?
Thanks for any information.
Jenny
At 9:30am on February 2, 2010, Susan F. Rzucidlo said…
Thank you Nicole, It wasn't hard to do the paperwork and the clerks of the court were very kind. When I get some time I will put together a step by step of what I did. The cost to do it myself was under $200 to hire an attorney ranged from $1,500 to $2,500. I'll be checking out the website more and more. IT is really well put together.
Susan
At 8:25pm on February 1, 2010, jenny cassidy said…
Thanks. I appreciate the information.
At 10:59pm on December 02, 2009, Linda gave Nicole a gift
Gift
You are doing a wonderful job. Love the radio show.
At 9:45pm on December 1, 2009, Donna Dolan said…
Hi Nicole, and thank you for the welcome message. I am still navigating through the website and hope to get up to speed quickly. I am a very busy, single mother of two beautiful, teenage sons, (my son, Connor ((autism/PDD) is going to be 17 next month!) and would love to facilitate/support a program locally here for our kids.
I'll be posting soon, and would love to share some thoughts and ideas.
Donna
At 5:36pm on November 16, 2009, Christine Furmanak said…
Hi, Nicole,

I am amazed you have the ability to welcome everyone individually as you do! I am studying the threads of the site, and am wondering if you share phone numbers, as I would be interested in talking with whomever has the most knowledge and time to share about what has been done to date with your childcare efforts. I know it is not easy ... the accredation, finding a building, liability issues, etc. Have you ever considered starting at someone's private residence. I see your members are pretty widely spread out. I am assuming the only childcare available currently are those providers who come into a person's home for a few hours? Thanks for your time, Nicole. Have a great night,
Christine
At 7:08am on November 16, 2009, Christine Furmanak said…
Hi, Nicole,

Too late? :-) No, I hope I have something to offer, being a seasoned parent of an older child.

I was intrigued by this site because I too have wished to implement the idea of a childcare coop or special needs site for family respite. I have lived in this area for 3 years. Prior to that, I lived in State College, PA, home of Penn State Univ., and parents were indeed meeting there to bring such a dream to fruition. I remarried after over a decade of being single, to a wonderful untiringly selfless man, and thus moved to this area, and am now beginning to find the energies again to explore how I might help others in the community struggling to embrace the diagnosis of autism.

Of all the myriad of challenges I have faced as a single parent raising an autistic son for nearly two decades now :-), I have found the greatest, most difficult to overcome long-term, to be that of pervasive fatigue. I believe a respite care setting for special needs kids, especially servicing autistic families, would have profound impact on the joy and love those families can spread out to their own members having found a bit of refreshment in their long journey.

It is not the complexities of this journey which overcome us; we can research and learn and adapt to the newness and sometimes puzzling mystery of autism as a diagnosis; but it is the unabated demand on our human energies as a mother, as a father. We just need someone to offer a hand up, a tiny reprieve as we recharge our bodies and re-energize our souls. Sometimes that means a husband and wife get-away, even if just a quick night out for dinner, sometimes it means a couple hours to share coffee with a friend. Sometimes it means connecting to family outings like attending a wedding celebration without all the complications of an autistic child in tow. :-)

At any rate, I am eager to see how I might be a part of this respite care dream you have fostered here. I would love to open communication, and am eager to hear more of your past inspiration and journey to this point.

God bless your efforts,
Christine
At 9:30pm on October 25, 2009, shanna lizardi said…
Hello Nicole,

Thank you for the very warm welcome. I'm currently still trying to get adjusted to our new location in Pennsylvania . I've recently found a daycare in Scranton Pennsylvania that helps with autism but now I'm battling with with is this the best environment for my beautiful little girl. The program I'm looking into works with autism children but after talking with daughters doctor she suggested that a better program would be one that is mixed with children who are on the spectrum and one's that aren't. Now I don't know what I should do I only want the best for my daughter. Do you have any information on the best types of learning environments for autistic children?
Thanks again
Shanna

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What would you like to get out of being apart of this network? How can you as a community member support the purpose of this network?
connect with other parents.
provide info and resources.
How did you hear about Autism Child Care Connection Inc.?
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Good News Report - What is RIGHT in The World Today!

So many times, I get links and news updates about everything horrible that happened to an individual with specials needs.  It ranges from obscene tales of abuse to limited almost, criminal lack of access to services.  What a downer!  I know that these things are happening and no you can't put your head in the sand, but do you only want to read that…

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Posted on December 28, 2011 at 11:38am

News you can use----Possible updates to SSI asset limits

My children have been the recipients of SSI since being diagnosed.  One of the bittersweet realities of the aid is its asset limits.  If you don't have any income the aid helps in providing for basic necessities, but once you have an income or are in transition, you can lose that aid at a time where you really need it(which is what happened to me when I started…
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Posted on June 14, 2011 at 8:00pm

If your interested......

Hi Everyone, 

I signed up to get notified about the publication of this childrens book at an autism walk I attended in April.  This book was adorable, its interactive with picture icons you or your child can put in and  move the story along.  I get no money or commission for sharing this book with…

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Posted on June 14, 2011 at 7:35pm

Update on Neli Latson, Lisa Alexander is my guest on You Aut to Know this Sunday at 6:30PM PART TWO

Unfortunately, we did not get a chance to finish our conversation last week, so Lisa will be back tonight.  Please join us again @ 6:30 PM only on You Aut to Know.

 

http://www.blogtalkradio.com/aut_toknow/2011/06/12/lisa-alexander-from-a-voice-for-neli-part-2

 

Thank you,

Nicole

Posted on June 12, 2011 at 5:15pm

Update on Neli Latson, Lisa Alexander is my guest on You Aut to Know this Sunday at 6:30PM,

I want to urge you to join me on You Aut to Know, this Sunday @ 6:30PM to listen in to a very timely and important show.

http://www.blogtalkradio.com/aut_toknow/2011/06/05/lisa-alexander-from-a-voice-for-nelifight-against-autism

 

Neli Latson is a young man with PDD NOS, Autism.  Last year he was arrested by Virgina police under…

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Posted on June 2, 2011 at 7:43pm

 
 
 

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