Advocacy and Support for Individuals w/Autism and their Families
Started this discussion. Last reply by Nicole Nov 16, 2009.
Started Sep 8, 2009
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So many times, I get links and news updates about everything horrible that happened to an individual with specials needs. It ranges from obscene tales of abuse to limited almost, criminal lack of access to services. What a downer! I know that these things are happening and no you can't put your head in the sand, but do you only want to read that…
Posted on December 28, 2011 at 11:38am
My children have been the recipients of SSI since being diagnosed. One of the bittersweet realities of the aid is its asset limits. If you don't have any income the aid helps in providing for basic necessities, but once you have an income or are in transition, you can lose that aid at a time where you really need it(which is what happened to me when I started…Posted on June 14, 2011 at 8:00pm
Hi Everyone, I signed up to get notified about the publication of this childrens book at an autism walk I attended in April. This book was adorable, its interactive with picture icons you or your child can put in and move the story along. I get no money or commission for sharing this book with… |
Posted on June 14, 2011 at 7:35pm
Unfortunately, we did not get a chance to finish our conversation last week, so Lisa will be back tonight. Please join us again @ 6:30 PM only on You Aut to Know.
http://www.blogtalkradio.com/aut_toknow/2011/06/12/lisa-alexander-from-a-voice-for-neli-part-2
Thank you,
Nicole
Posted on June 12, 2011 at 5:15pm
I want to urge you to join me on You Aut to Know, this Sunday @ 6:30PM to listen in to a very timely and important show.
Neli Latson is a young man with PDD NOS, Autism. Last year he was arrested by Virgina police under…
ContinuePosted on June 2, 2011 at 7:43pm
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My first question - does anyone know of a good pediatrician who has experience with children on the spectrum?
Thanks for any information.
Jenny
Susan
I'll be posting soon, and would love to share some thoughts and ideas.
Donna
I am amazed you have the ability to welcome everyone individually as you do! I am studying the threads of the site, and am wondering if you share phone numbers, as I would be interested in talking with whomever has the most knowledge and time to share about what has been done to date with your childcare efforts. I know it is not easy ... the accredation, finding a building, liability issues, etc. Have you ever considered starting at someone's private residence. I see your members are pretty widely spread out. I am assuming the only childcare available currently are those providers who come into a person's home for a few hours? Thanks for your time, Nicole. Have a great night,
Christine
Too late? :-) No, I hope I have something to offer, being a seasoned parent of an older child.
I was intrigued by this site because I too have wished to implement the idea of a childcare coop or special needs site for family respite. I have lived in this area for 3 years. Prior to that, I lived in State College, PA, home of Penn State Univ., and parents were indeed meeting there to bring such a dream to fruition. I remarried after over a decade of being single, to a wonderful untiringly selfless man, and thus moved to this area, and am now beginning to find the energies again to explore how I might help others in the community struggling to embrace the diagnosis of autism.
Of all the myriad of challenges I have faced as a single parent raising an autistic son for nearly two decades now :-), I have found the greatest, most difficult to overcome long-term, to be that of pervasive fatigue. I believe a respite care setting for special needs kids, especially servicing autistic families, would have profound impact on the joy and love those families can spread out to their own members having found a bit of refreshment in their long journey.
It is not the complexities of this journey which overcome us; we can research and learn and adapt to the newness and sometimes puzzling mystery of autism as a diagnosis; but it is the unabated demand on our human energies as a mother, as a father. We just need someone to offer a hand up, a tiny reprieve as we recharge our bodies and re-energize our souls. Sometimes that means a husband and wife get-away, even if just a quick night out for dinner, sometimes it means a couple hours to share coffee with a friend. Sometimes it means connecting to family outings like attending a wedding celebration without all the complications of an autistic child in tow. :-)
At any rate, I am eager to see how I might be a part of this respite care dream you have fostered here. I would love to open communication, and am eager to hear more of your past inspiration and journey to this point.
God bless your efforts,
Christine
Thank you for the very warm welcome. I'm currently still trying to get adjusted to our new location in Pennsylvania . I've recently found a daycare in Scranton Pennsylvania that helps with autism but now I'm battling with with is this the best environment for my beautiful little girl. The program I'm looking into works with autism children but after talking with daughters doctor she suggested that a better program would be one that is mixed with children who are on the spectrum and one's that aren't. Now I don't know what I should do I only want the best for my daughter. Do you have any information on the best types of learning environments for autistic children?
Thanks again
Shanna
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