Autism Child Care Connection Network

Advocacy and Support for Individuals w/Autism and their Families

For the past 3 years, I have been struggling to find meaning through my children's diagnosis. I have searched for answers and created new questions. Through all the advice and resources I have gathered there was nothing to really answer the question why. Vaccines, genetics, diet, supplements, cosmic destiny, I've researched all of it and nothing really made me feel like I had a real answer to my children's condition or what my role as their parent should be. So I pushed it all aside to take solace in being a resource for others. This experience has been fulfilling and selfish as well. Other's experiences have been a mirror for my own. The emotions I have experienced, the fear and even the joys I have traversed through helped me come to my own conclusions. Which of course could change in month or a year from now. I have never really accepted my children. I wanted to cure them, change them,"typicalize" them, but it wasn't really for them, it was for me. It was to make me feel better. Some things worked, some things didn't, some things made sense and a lot of things didn't. I pride myself on being able to take responsibility for my thoughts and actions, but admitting this simple fact has been the hardest to do. Our lives are journeys, they won't be like anyone else's. My experience although very similar to many of you who read this, will still be very different from yours. I am happy to express that acceptance at least for me has been the only way to deal with the challenges and questions, my family faces day to day. Summer's have traditionally been hard, because it has always meant I had to spend more time with my kids and really see them for who they are. Don't get me wrong, I love my children and our experience on this journey of life is personal. I am not a banner mother, I get tired, angry and sad about the things my kids can't do. The behaviors would increase, the regressions would start and many times I would feel more isolated and overwhelmed. This summer was different. The level of services and ESY were the same, but I was different. For the first time since the last was diagnosed, i am not trying to find any special meaning in why my family is the way it is. I don't really even care anymore. These are my babies and I love them for who they are. The big plus, which I think made the difference for me is that I know longer care if anyone else accepts them as well. That means if kids at the playground run in terror, that's there problem, if adults stare at the super duper meltdowns, its probably because they don't understand. I don''t want to be angry anymore and I really don't want to be looking for ways to change them. I will always stand up for information about biomedical and alternative treatments. I will always stand up for the rights of people with disabilities to be accepted into mainstream society. Parent's need to know they have other options besides, medication and education. I can't help but do that, but in some ways it is necessary for me to have balance in my interactions and participation with the overall "autism community." I had once written that autism is my life. That I ate, slept and breathed autism. What kind of life is that? Even for my children, do they want to be defined by a one dimensional label? If they could communicate it, I think not. It would take away from my oldest independent spirit, my middle one's curiosity and my youngest glowing empathy. They are more than a diagnosis and finally I am more than just a mother with 3 kids with autism.

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Tags: autism, journey

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Comment by Nicole on November 30, 2010 at 10:10pm
Thanks mom, that was very special and I appreciate you expressing that to me. I love you as well and you and dad are the reason why I have the freedom to explore these issues with all the love and support you have given me my whole life and particularly through this journey.
Comment by Linda on November 27, 2010 at 1:38pm
Nikki,
This is one of the reasons why I love you so much. You have such a great ability change as you get more knowledge and understanding. You continually absorb information and have the ability to share that information with others so eloquently. What is more important is the growth that I see in you as you have realized that you are more than a mother of 3 kids with autism and you always have been. You are a great inspiration. You love totally and unconditionally. You are awesome and I hope I had something to do with that...or maybe in spite of me you have now decided to love yourself and accept all. You are a blessed daughter and you will achieve anything you put your mind to. So go ahead. Take flight. I still like a mother will probably try to interfere and give my unwanted opinions but I know that you are strong enough to handle it. I love you. Spread your wings and soar.

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